What’s Hope got to do with it?- Coping, resilience and hope for mothers of a child with disability

What’s Hope got to do with it?- Coping, resilience and hope for mothers of a child with disability

2011-12-01 00:00:00 18m

This paper is an exploration of the theoretical grounds of resilience and hope. In our previous work with women who mother children with ADHD or ASD we found that many women are themselves disabled by their child’s disability; they are isolateresild, marginalised and silenced (Carpenter & emerald 2009; Carpenter & Austin 2007). Yet, these women persevere in the face of the ongoing challenges of mothering a child with a disability. We now ask: is this resilience they show, or hope or is it something else again?

Using a narrative inquiry methodology we reflect on the women’s experience and focus on one particular case study: Coralie speaks of resilience, hope and belief as she copes with the challenges presented through mothering her son, Adam. For Coralie, hope enables her to envision a future for her son yet she told us "It is more than hope". Her working definition of hope captures the sense that the hope has to be realistic and this introduces a deeper foundation to her resilience. We use her story to unpack the meaning of coping, resilience and hope for Coralie and reflect on resilience and hope for the many women we met. A deliberate aim of our work is to celebrate these remarkable women and give them voice.

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